Sources
Citations for the statistics on our site.
- 1.Cystic Fibrosis Foundation. About Cystic Fibrosis. Nearly 40,000 people are living with Cystic Fibrosis in the United States. www.cff.org/intro-cf/about-cystic-fibrosis
- 2.Zvereff VV, Faruki H, Edwards M, Friedman KJ. "Cystic fibrosis carrier screening in a North American population." Genet Med 2014;16(7):539-46. Cystic Fibrosis carrier frequency of about 1 in 36 across a screened North American population (1 in 27 among White individuals); commonly rounded to about 1 in 30.
- 3.Khan S, Goldman KN, et al. "The cost of assisted reproductive technology in the United States." PMC8695349, 2021; American Society for Reproductive Medicine (ASRM); FertilityIQ. Cost estimates used in the "cost of a single Cystic Fibrosis IVF journey" breakdown on our homepage, covering carrier and genetic testing, sperm extraction, one IVF cycle, medications and monitoring, and pre-implantation genetic testing. www.ncbi.nlm.nih.gov/pmc/articles/PMC8695349/
- 4.Jain R, Taylor JL, Kazmerski TM, et al. "Reproductive health guidance for the cystic fibrosis community: a Cystic Fibrosis Foundation Position Paper." Lancet Respir Med 2026;14:730-46. Source for the statistics on male and female infertility in Cystic Fibrosis (over 95% of men cannot naturally conceive due to congenital bilateral absence of the vas deferens; historical female infertility as high as 37% in the pre-CFTR-modulator era), and for the current research gap in reproductive health for men with Cystic Fibrosis. doi.org/10.1016/S2213-2600(26)00120-7