“Every Cystic Fibrosis family deserves the chance we had, to start a family of their own.”
Everything we went looking for, in one place.
We couldn’t find a single place that brought together the research, the best practices, and the stories of people with Cystic Fibrosis going through IVF. We’re gathering what we’ve discovered here, for anyone else looking. We’ll keep adding as we learn and find more.
We are a family and a foundation, not a medical practice. Nothing here is medical advice, and no organization listed is affiliated with us unless we say so. Every diagnosis, every body, and every clinic is different: we suggest reviewing anything you find here with your own Cystic Fibrosis and fertility care team.
The published evidence
Research, clinical guidance, and reference libraries on Cystic Fibrosis, fertility, and assisted reproduction.
Reproductive health guidance for the cystic fibrosis community: a Cystic Fibrosis Foundation Position Paper
Jain R, Taylor JL, Kazmerski TM, et al. The Lancet Respiratory Medicine. 2026;14(8):730–746. Published online July 13, 2026. doi:10.1016/S2213-2600(26)00120-7
The Cystic Fibrosis Foundation brought together a multidisciplinary committee — obstetrician–gynaecologists, urologists, pulmonologists, pharmacists, genetic counsellors, nurses, social workers, and people with Cystic Fibrosis — to review the literature and set out current best practice. Five working groups covered reproductive health care delivery, contraception, fertility, preconception and pregnancy, and CFTR modulator exposure in utero and during lactation.
The full paper can be downloaded by following the instructions on the publisher's page.
People who help IVF make sense
Not everyone here works with Cystic Fibrosis patients directly. They work in fertility and IVF generally, and some of what they teach may apply to your treatment — some of their explanations are what helped us understand what we were hearing from our own care team.
Rooms where people have been through it
Groups, programs, and conversations worth finding early.
Bold Enough to Ask
BreatheStrong CF's podcast on sexual and reproductive health in Cystic Fibrosis. Members of the CF community host and sit on the panels, with expert segments from providers, researchers, and social workers. The first episode is on male infertility and the IVF experience; later ones cover becoming a dad, sexual function, and aging with CF.
Journeys, in their own words
First-hand accounts of Cystic Fibrosis IVF journeys — ours, and other families', written as they happened.
Something helped you? Send it to us.
A study, a doctor, a group, a blog post that made a hard week easier. We’d love to review it and add it here to help others.