Resources

Everything we went looking for,
all in one place.

We couldn’t find a single place that brought together the research, the best practices, and the stories of people with Cystic Fibrosis going through IVF. We’re gathering what we’ve discovered here, for anyone else looking. We’ll keep adding as we learn and find more.

Disclaimer

We are a family and a foundation, not a medical practice. Nothing here is medical advice, and no organization listed is affiliated with us unless we say so. Every diagnosis, every body, and every clinic is different: we suggest reviewing anything you find here with your own Cystic Fibrosis and fertility care team.

Research & studiesClinics, doctors & specialistsCommunitiesPersonal stories

The published evidence

Research, clinical guidance, and reference libraries on Cystic Fibrosis, fertility, and assisted reproduction.

Position paperFeatured

Reproductive health guidance for the cystic fibrosis community: a Cystic Fibrosis Foundation Position Paper

Jain R, Taylor JL, Kazmerski TM, et al. The Lancet Respiratory Medicine. 2026;14(8):730–746. Published online July 13, 2026. doi:10.1016/S2213-2600(26)00120-7

The Cystic Fibrosis Foundation brought together a multidisciplinary committee (obstetrician-gynaecologists, urologists, pulmonologists, pharmacists, genetic counsellors, nurses, social workers, and people with Cystic Fibrosis) to review the literature and set out current best practice. Five working groups covered reproductive health care delivery, contraception, fertility, preconception and pregnancy, and CFTR modulator exposure in utero and during lactation.

Read it on ScienceDirect →Abstract on PubMed →

The full paper can be downloaded by following the instructions on the publisher's page.

CFReSHC Sexual & Reproductive Health GuideA patient-built guide covering fertility, contraception, pregnancy, and reproductive care for people with Cystic Fibrosis.

Guide→cfreshc.org

CF and male health: sexual and reproductive health, hypogonadism, and fertilityMen with Cystic Fibrosis generally know they are infertile, but far fewer know they are also at risk of low testosterone. The authors walk through both, along with the paths to fatherhood, and argue for better standards of care.

Study→Naz Khan F, Mason K, Roe AH, Tangpricha V. J Clin Transl Endocrinol. 2021;27:100288 · doi:10.1016/j.jcte.2021.100288

Prioritizing sexual and reproductive health research and care for people with cystic fibrosisA 2023 workshop report from the Cystic Fibrosis Foundation's SHARING research working group, which surveyed 330 adults with Cystic Fibrosis and caregivers to set the research priorities the community says it wants.

Study→Kazmerski TM, et al. Journal of Cystic Fibrosis. 2024;23(4):639–646

Men's Sexual and Reproductive Health ResourcesBreatheStrong CF's library on male sexual and reproductive health: recorded sessions with urologists, genetic counsellors, and dietitians, blog posts, and a running list of the research on infertility, hypogonadism, and assisted reproduction.

Library→breathestrongcf.org

People who help IVF make sense

Not everyone here works with Cystic Fibrosis patients directly, but they work in fertility and IVF generally, and what they teach often applies. Their explanations are what helped us understand what we were hearing from our own care team.

Dr. Lucky SekhonA double board-certified OBGYN and reproductive endocrinologist whose stated mission is to empower people with practical, scientifically accurate information to make the right fertility decisions for themselves. In her words: "My goal has always been to make this feel like something you can understand and take charge of." Her blog and her book are both called The Lucky Egg, and she posts regularly on Instagram, often taking apart the myths that circulate about IVF.

Educator→theluckyegg.com · @lucky.sekhon on Instagram

Rooms where people have been through it

Groups, programs, and conversations worth finding early.

PodcastFeatured

Bold Enough to Ask

BreatheStrong CF's podcast on sexual and reproductive health in Cystic Fibrosis. Members of the CF community host and sit on the panels, with expert segments from providers, researchers, and social workers. The first episode is on male infertility and the IVF experience; later ones cover becoming a dad, sexual function, and aging with CF.

Episodes and show notes →Spotify →Apple Podcasts →

Cystic Fibrosis IVF groupA private Facebook group of Cystic Fibrosis patients and partners going through fertility treatment, comparing clinics, costs, and results.

Community→facebook.com · private group

Cystic Fibrosis Foundation: CF Peer ConnectThe Cystic Fibrosis Foundation matches you one-to-one with someone who has been through a similar experience. Open to people with CF and their family members, 16 and older. Starting a family is one of the topics you can request a mentor for.

Program→cff.org · one-to-one

Cystic Fibrosis Foundation: CF CirclesVirtual small-group sessions on a rotating set of topics, each led by a trained member of the CF community. There was a Circle on reproductive health in 2025, and you can sign up to be notified when registration opens for the next ones.

Program→cff.org · small groups